CMT Association news release
Iowa City Walk 4 CMT | June 21 | WALKING TO END CMT
When
Saturday, June 21, 2025
Check-in: 9:30 AM
Walk begins: 10:00 AM
Where
Terry Trueblood Recreation Area – Park Lodge
579 McCollister Boulevard
Iowa City, IA 52240
What
Local Iowa City community resident Paige Adair is leading the inaugural Iowa City Walk 4 CMT, and she is doing it for a personal reason. Paige lives with Charcot-Marie-Tooth disease (CMT), a rare, currently incurable, and debilitating neuromuscular disease. She organized this walk to raise awareness, build community, and help end the disease she lives with every day.
This Walk 4 CMT is being held in partnership with the CMTA Center of Excellence at the University of Iowa Hospitals & Clinics. The clinic is led by world-renowned CMT physician-scientist Michael Shy, MD, who provides expert care to individuals with CMT across Iowa, with many traveling from around the world to receive care through his team.
The event invites participants of all ages to walk in support of those living with CMT. The route follows the scenic trails of Terry Trueblood Recreation Area. An estimated 1,300 people in Iowa and more than 3 million worldwide live with CMT, which can cause muscle weakness, difficulty walking, loss of sensation, and more.
Learn more or register at cmtausa.org/iowacitywalk
About CMTA
All proceeds support the Charcot-Marie-Tooth Association (CMTA), a community-led, community-driven 501(c)(3) nonprofit organization with a mission to support the development of new treatments for CMT, improve quality of life for those with CMT, and ultimately find a cure. Through its Strategy to Accelerate Research (STAR) program, CMTA unites the community with clinicians and industry experts to drive treatment development forward. CMTA has invested more than $30 million in research since 2008. Learn more at cmtausa.org.